Public Preferences About Uses of Electronic Health Info

David Grande and others have an interesting paper on “Public Preferences About Secondary Uses of Electronic Health Information” in the newest issue of JAMA: Internal Medicine.

Research is only as good as the data on which it is based, and the confidence of the public in allowing researchers to use electronic health information for secondary purposes (for example, using health care claims to study the occurrence of hospital re-admissions; the claim was created to pay for care, researchers want to use it for research) is important in determining access to important data. Their figure 2 shows the public’s confidence in different organizations reasonably using their health data. This paper is an important one for researchers to read and ponder, both in terms of what sources of data we can use, as well as in terms of who is likely to opt in or out of such uses of data. Key issues.

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About Don Taylor
Professor of Public Policy at Duke University (with appointments in Business, Nursing, Community and Family Medicine, and the Duke Clinical Research Institute). I am one of the founding faculty of the Margolis Center for Health Policy, and currently serve as Chair of Duke's University Priorities Committee (UPC). My research focuses on improving care for persons who are dying, and I am co-PI of a CMMI award in Community Based Palliative Care. I teach both undergrads and grad students at Duke. On twitter @donaldhtaylorjr

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